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Hi There, I'm Kris. I'm a quirky sort who loves silly jokes, sunflowers, music, divine interruptions and music. I am devoted to my nerdly, ginger-haired husband, our 3 living & growing kids, and missing our 1 Babe in Heaven. We journey together through this life, dancing to our own beat, while learning each step as my children and I are effected by a life-threatening & degenerative chronic illness called Ehlers Danlos Syndrome (EDS). Please look on the "What is Ehlers Danlos Syndrome" to the bottom right of the page to learn more about EDS. I believe I have been given this journey in order to over come it, and this is my story of how I get it done.

Saturday, January 21, 2012

WARNING: Negativity abounds beyond this title

It's been a busy week filled with work projects, kid-concert (so lovely), Dad-arguments, Dr. appointment, distracted sleep & the usual symptoms on top of it all.  Not much time or energy for blogging; not that there is much to say that is very interesting.  I am annoyed at the monotony of it all.  I am here in my chair, body length "massager"/heater-mat-thing vibrating beneath me, huge headphones over my ears trying desperately trying to drown out the overwhelming body pain and nausea screaming inside me with some very loud Baroque Chamber music.
No awesome dazzling today- although, the music is pretty awesome.


  1. Oh Kris I'm sorry you are having such a hard week! I wish there was something I could say to make it feel better. I'm glad you posted even though it is brief - even though you didn't really feel like it.

    Thinking of you!

  2. Ugh... Life seems to take on these horror weeks at times. Particularly at this time of year, it seems when will the weather break and the sun will shine for more than 8 hours a day. Hang in there Kris - this week will bring better things! Smiles to you!! :-)