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Hi There, I'm Kris. I'm a quirky sort who loves silly jokes, sunflowers, music, divine interruptions and music. I am devoted to my nerdly, ginger-haired husband, our 3 living & growing kids, and missing our 1 Babe in Heaven. We journey together through this life, dancing to our own beat, while learning each step as my children and I are effected by a life-threatening & degenerative chronic illness called Ehlers Danlos Syndrome (EDS). Please look on the "What is Ehlers Danlos Syndrome" to the bottom right of the page to learn more about EDS. I believe I have been given this journey in order to over come it, and this is my story of how I get it done.

Wednesday, January 11, 2012

I'm here, but with out much to say

"What you do speaks so loud that I cannot year what you say." 
~ Ralph Waldo Emerson

I feel bound to/by/with my actions, so much so that there is no energy to speak or share a whole lot.  I'm experiencing what I've described in the past as some kind of "flare".  I haven't had one this badly since, I think, last Spring- around the time I stopped eating dairy and gluten.  I go to work, and go home to recover, then go to work again.

  Things are going well at work.  I'm keeping my attitude positive.  The business of my days & my iPod while in my office keep my mind off my body.  My Director & I were talking about health in general (he had a freak- massive heart attack at 33 & survived and has been taking control of his health ever since).  I told him that I have been a wreck since the testing on Friday and he told me that he couldn't tell I had been feeling so badly.  "Good!" I said, "I still have to do what I need to do- you know, life."
 "You're doing a great job", he said.  
That was really nice to hear.


  1. Replies
    1. Thank you for the encouragement & welcome to the blog. :)

  2. I always find it both excellent and depressing when it becomes apparent people have no idea how much pain youre in.