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Hi There, I'm Kris. I'm a quirky sort who loves silly jokes, sunflowers, music, divine interruptions and music. I am devoted to my nerdly, ginger-haired husband, our 3 living & growing kids, and missing our 1 Babe in Heaven. We journey together through this life, dancing to our own beat, while learning each step as my children and I are effected by a life-threatening & degenerative chronic illness called Ehlers Danlos Syndrome (EDS). Please look on the "What is Ehlers Danlos Syndrome" to the bottom right of the page to learn more about EDS. I believe I have been given this journey in order to over come it, and this is my story of how I get it done.

Saturday, November 12, 2011

Inside Thoughts: an evolution

Being the neophyte blogger that I am, I am still exploring & getting to know myself as a putting-myself-out-there-blogger (not something I do very comfortably in my outside life).  I'm noticing now, that this breath-of-fresh-air outlet of mine is taking on a personality of it's own; instead of me telling this blog what I want it to be, my inside thoughts & this blog are evolving into something I don't yet know.  I had originally intended for this blog to be about me & Ehlers Danlos Syndrome; however, I don't let EDS rule my life outside, and so it seems unnatural for it to be the rule of my blog.  EDS is apart of me, and I am apart of it; mathematically, one part of something is just that, and it can't be made whole until all the parts are put together.  My experiences with EDS are important to who I have become; they are part of what have given me a view of life that I feel many people don't have.  If I am truly honest, while I wish my body would just let me LIVE my days without so much struggle, I am thankful for this life-perspective. It's a tangible carpe diem that screams daily into most of my subluxating & dislocating joints, my unpredictable heart rate, body temperature & struggling body.  It is this that helps keep me from disappearing in fear, but instead standing firmly to hold a hand who's most precious loved one is dying, feeling as honored to be there with them as it is to be holding another's hand as they give birth.  It is this perspective that makes me want to experience every moment in between, the good & the bad to it's fullest so that when my time comes I can confidently kiss the world good-bye knowing that I have been good n' loved by those in my life and that they have been good n' loved by me.  
Thus the blog's name change; it fits better to what this blog has become, or perhaps was since my first post.  I am not writing to gain readers, though seeing that it is being read certainly makes me smile :) , I'm writing it for the exact reason above- to let my inside thoughts play.  My inside thoughts use commas too often & they love run-on-hyphenated-sentences.  My inside thoughts love word pictures, silly/punny jokes, and they are not consistently eloquent- if ever.  They are just mine, and they are here.  :)


  1. My blog took over too, in fact it pretty much grew legs and ran away from me! It's one of the wonderful things about creativity - it so rarely turns out to be exactly what you imagined.

  2. Hi Displaced & thank you for your comment. I agree with you, allowing your creation to breath & grow is a most wonderful part of a creative outlet. **off to read your blog** :)

  3. I found this off a name-link from the stir where you mentioned Ehlers Danlos. I have Ehlers Danlos Hypermobility as well. I would be happy to have corrisponsdence with someone else as well. I am someone who is greatly effected by it who frequently deals with sublaxations and dislocations and daily pain. If you'd like to connect me, my email is off my blog: tigaseren.blogspot.com

  4. Thank you for reading & comment Jespren. It's great to meet other EDSer's who understand what it's like to live with these challenges. I would love for you to follow this blog & have conversations with you from here :). I hope to "see" you again!