EDS Awareness Month has come & gone, so I thought I'd post the rest of my Face Book Awareness rants up for whoever may be reading. These rants are few, but they are there. I can understand someone being disappointed in my Elasti-girl representation of 4 measly (albeit informative & eye-feast-y) posts. One might think that I would have done everything I could to make the most out of the outlets afforded me by our handy social networks to spread the stretchy word. If I were judging someone else, and not myself, I would think that someone afflicted with a syndrome that riddles her with a crap-load of different diseases that effects every minute of her very long days would spend a lot more time making sure she came up with at least one colorfully witty and smart-astic EDS tidbit a day during the month the national foundation raising money for research/treatment on such a syndrome was trying to make official across the world. Fortunately for me, I knew better than to expect such things. I'm busy & I know it. The truth is, if I was cute/charismatic/important enough to have been asked which month I would prefer to be Ehlers Danlos Awareness month, I can assure you it would not have been May. May ties with December in eventfulness on my calendar, so the fact that I did 4 posts at all is pretty darn fantastic, and even though you've probably already finished judging, I reject it completely (rejecting judgement, btw is an awesome weapon to have in your psyche-arsenal, I highly recommend it and wish every girl was taught how to do this at as young an age as possible).
Aside from Mother's Day, which by the way gets better & better the older these kids of mine get, for which my preciousness-es got me exactly what I wanted:
|A day with them at the beach|
May also happened to be the 8th Anniversary of this, the most hilariously and often inappropriately clever boy's birth in my new car.
May would bring the 12th Anniversary of our first babe...the one who made me a Mom....just 7 days later.
|I know...I'm showing her face...and I'm wearing a towel on my head (getting ready for work)....but she's so cute & lovely all rolled into one smarty-artsy-pants.|
Then of course there are the Dr. appointments, end-of-the-school-year violin concerts, school programs and work projects (oh the many work projects...) that simply don't care about whatever else may be going on in May- they just...don't...give-a-damn!
So, without further ado, Ehlers Danlos Syndrome awareness & knowledge commence:
May 30, 2012
May 31, 2012
|picture from: http://chronicle.com/blogs/brainstorm/does-philosophy-just-keep-going-in-circles/46098|
Today is the last day of Ehlers Danlos Syndrome Awareness Month & instead of posting more information on Dysautonomia, I'm going to have to do that later, or ask you to Google it. Instead Husband & I will finish the paperwork we need to bring to the Geneticist tomorrow, where son-C will be formally diagnosed with Ehlers Danlos Syndrome.
So there it is/was. This was my first time participating in any kind of EDS Awareness "thing", so I'm pretty proud of myself for going onto FB and outing myself with it. For the record, if I were cute/charismatic/important enough to have been asked my preference of months for EDS Awareness, I'd have chosen June; there is only 1 birthday- that of our son J- who passed away from Ehlers Danlos Syndrome shortly before birth on June 29, 2001. <3