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Hi There, I'm Kris. I'm a quirky sort who loves silly jokes, sunflowers, music, divine interruptions and music. I am devoted to my nerdly, ginger-haired husband, our 3 living & growing kids, and missing our 1 Babe in Heaven. We journey together through this life, dancing to our own beat, while learning each step as my children and I are effected by a life-threatening & degenerative chronic illness called Ehlers Danlos Syndrome (EDS). Please look on the "What is Ehlers Danlos Syndrome" to the bottom right of the page to learn more about EDS. I believe I have been given this journey in order to over come it, and this is my story of how I get it done.

Monday, May 7, 2012

Victory over the Evil Twin & other tidbits

As mentioned here,  I had something removed in late March that I could have only guessed was the remnants of my evil twin that I victoriously squelched while in-utero thus saving the world from certain slavery over said evil (as adorable as she would have been- it simply had to be done for the safety of the world- you're welcome).  It turned out, 3 weeks later, that the tumor was classified as "pseudolymphoma" = a weird, and of course rare, collection of lymph cells in a weird spot that look like malignant lymphoma, and sort of act like it, but is benign and not really a big deal (likely disguise evil twin!). So it's gone, likely not to be seen again and also not the cause for any of my symptoms.  I am over-the-moon relieved that this is nothing to be concerned with, yet it would have been really convenient (since it was such a pain and needed removed & all) if it WERE the cause of my symptoms and then they'd have all disappeared by now.  Alas, that is not the case and I still have all of the symptoms I started with, but it's worth it knowing that I don't need to add Fight Cancer to my list of things to do. :)
I have not had any Dr. appointments since just after my procedure aside from PT & OT (I still need to blog about that- later) and it's been wonderful to have my body left alone.  Every poke, prod, test and procedure had left me feeling worse than before, and since nobody has seemed to find anything that helps me, it hardly seemed worth it.  I feel like I've finally had a chance to recover from it all and I'm back to my normal broken-ness; good days, bad days- the bad outweighing the good, but at least I'm used to that.  One good thing that has come out of all of this is that despite my Father's inability to do anything helpful, he and my stepmom seem to understand that this is not my gallbladder, not all in my mind and it effects every minute of my day- and that understanding is a good thing indeed.


  1. God, I am so sorry you have to go through all of this. Reading your last few blog posts reminds me how important it is to appreciate having no chronic pain. I can't even imagine dealing with that- and you do it with a sense of humor and a lot of grace. I wish and wish and wish that your pain goes away- and glad that you found out it's not Cancer.
    You rock.

    1. What a nice compliment- thank you Maria. :)