Elasti-Girl

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Hi There, I'm Kris. I'm a quirky sort who loves silly jokes, sunflowers, music, divine interruptions and music. I am devoted to my nerdly, ginger-haired husband, our 3 living & growing kids, and missing our 1 Babe in Heaven. We journey together through this life, dancing to our own beat, while learning each step as my children and I are effected by a life-threatening & degenerative chronic illness called Ehlers Danlos Syndrome (EDS). Please look on the "What is Ehlers Danlos Syndrome" to the bottom right of the page to learn more about EDS. I believe I have been given this journey in order to over come it, and this is my story of how I get it done.

Wednesday, February 15, 2012

Hanging in...

...and that's all I can do sometimes.  I've had a break from Dr. appointments, which has been a relief, though I've been in contact with the GI since my stomach pain was so much worse since the endoscopy.  That being said, I feel like today my stomach has been better than it's been in the last week, but I'm unsure if it's getting better, or if it's because I'm just eating a bare minimum.   It seems the cortisone shot has taken effect in my right hip by improving it's pain by about 50% (which is quite remarkable), but I am missing being able to take helpful meds for my other joint pain (I usually use a combination of naproxen and heating pads, which never take all my pain away, but take the slightest edge off- I am terrified to take anything that will make me "out of it").  I'm sort of in an annoying place in my head; my thoughts are consumed with how awful I feel- and I try to NEVER allow myself to do that, since I am my family's bread-winner and I must continue to work (a fact that I think is making my husband very depressed, which really really sucks), and I just don't like hearing myself whine when I still have so much to be thankful for outside of my stupid body.  I think if I could just get a good night's sleep, that would be something in the right direction- but even that eludes me right now.
I'm taking things a little at a time; hour by hour, minute by minute if need be...praying for this slump to just go away...

I thank you for reading and your comments, they mean very much & encourage me. :)

5 comments:

  1. Found you on the chronic babe forum. My heart hurts for all that it sounds like you are going through! Amen to taking it a little at a time.

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  2. I'm sorry to hear that you are in such a slump :( I hope things get better soon. I'll keep you in my thoughts.

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  3. Hey.
    Been away from the online world for a bit. Thanks for following my blog. Hope things get better.

    I know you do yoga which I think is cool, was wondering if you have done joint mobility work instead of or adjunct to.

    Take care and hang in there.

    Steve

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    1. Hi Steve,
      Thanks again for stopping by. I am having an Physical Therapy & Occupational Therapy evaluation at the end of the month & I am hoping for some good ideas- would you mind sharing what type of joint mobility work you have experience with? I will be googling until then- I like to be well informed before my visits. :)

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  4. Thanks again for the encouragement everyone :)

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