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Hi There, I'm Kris. I'm a quirky sort who loves silly jokes, sunflowers, music, divine interruptions and music. I am devoted to my nerdly, ginger-haired husband, our 3 living & growing kids, and missing our 1 Babe in Heaven. We journey together through this life, dancing to our own beat, while learning each step as my children and I are effected by a life-threatening & degenerative chronic illness called Ehlers Danlos Syndrome (EDS). Please look on the "What is Ehlers Danlos Syndrome" to the bottom right of the page to learn more about EDS. I believe I have been given this journey in order to over come it, and this is my story of how I get it done.

Wednesday, February 15, 2012

Hanging in...

...and that's all I can do sometimes.  I've had a break from Dr. appointments, which has been a relief, though I've been in contact with the GI since my stomach pain was so much worse since the endoscopy.  That being said, I feel like today my stomach has been better than it's been in the last week, but I'm unsure if it's getting better, or if it's because I'm just eating a bare minimum.   It seems the cortisone shot has taken effect in my right hip by improving it's pain by about 50% (which is quite remarkable), but I am missing being able to take helpful meds for my other joint pain (I usually use a combination of naproxen and heating pads, which never take all my pain away, but take the slightest edge off- I am terrified to take anything that will make me "out of it").  I'm sort of in an annoying place in my head; my thoughts are consumed with how awful I feel- and I try to NEVER allow myself to do that, since I am my family's bread-winner and I must continue to work (a fact that I think is making my husband very depressed, which really really sucks), and I just don't like hearing myself whine when I still have so much to be thankful for outside of my stupid body.  I think if I could just get a good night's sleep, that would be something in the right direction- but even that eludes me right now.
I'm taking things a little at a time; hour by hour, minute by minute if need be...praying for this slump to just go away...

I thank you for reading and your comments, they mean very much & encourage me. :)


  1. Found you on the chronic babe forum. My heart hurts for all that it sounds like you are going through! Amen to taking it a little at a time.

  2. I'm sorry to hear that you are in such a slump :( I hope things get better soon. I'll keep you in my thoughts.

  3. Hey.
    Been away from the online world for a bit. Thanks for following my blog. Hope things get better.

    I know you do yoga which I think is cool, was wondering if you have done joint mobility work instead of or adjunct to.

    Take care and hang in there.


    1. Hi Steve,
      Thanks again for stopping by. I am having an Physical Therapy & Occupational Therapy evaluation at the end of the month & I am hoping for some good ideas- would you mind sharing what type of joint mobility work you have experience with? I will be googling until then- I like to be well informed before my visits. :)

  4. Thanks again for the encouragement everyone :)