Inside Thoughts: Blessed Adventure

Sunday, October 30, 2011

An opportunity arose.

I went.

I ended up lost.

It was beautiful.

Thankfully (this time), I found my way home before ending up in another state. :)

What is Ehlers-Danlos Syndrome (EDS)?

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Ehlers-Danlos Syndrome (EDS) is a group of heritable connective tissue disorders affecting about 1 in 5,000 – 10,000 (though I've heard up to 1 in 25,000 depending on the study). It is caused by faulty collagens. Collagens provide structure and strength to connective tissue throughout the body. Collagen is mostly found in skin, blood vessels, and internal organs; vascular structures (the walls of your veins & arteries), hallow organ structures (GI Tract, female reproductive organs, etc.) ligaments.

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There are six major types of Ehlers-Danlos Syndrome. The different types of EDS are classified according to their manifestations of signs and symptoms.

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Many EDS patients have so many signs and symptoms, it makes it hard for a doctor to diagnose this disorder; it effects many people in different ways so I can only explain my experiences with how EDS effects me.
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There is no cure and no treatments to cure Ehlers-Danlos Syndrome, only treatments to try and alleviate symptoms.

Before I kiss this world good-bye, I'd like to...

~Inspire someone to live with arms wide open, connecting with their spirit to the earth and others

~"Plant" a winter pinwheel garden

~ Watch as many sunrises from the Atlantic as I can

~ See as many sunsets into the Pacific as I can.

~See the sun rise & set at the same time.

~ Go to Disney World with my children- DONE! Thanks for Make- A Wish Foundation 12/1/12

~Attend an EDNF Conference

~Explore Toronto, Canada

~Explore Ireland

~ become old & eccentric

~Learn to live better with EDS so that my children can live better

.......... list in progress

Inside Thoughts

Elasti-Girl

Sunday, October 30, 2011

Blessed Adventure

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