I went to a funeral today. It was not Melanie's funeral, though her service was today as well (she lived on the West Coast- I'm a transplant now living on the East Coast). Today's funeral was for 7 month old Graham; the son of a co-worker. Graham was an incredible baby boy; born at 24 weeks gestation weighing only 580 grams, he fought for months a previously unsurvivable infection and won! Graham did very well for a while after that, but then his little body got too weak and too tired. His parents did an amazing job loving & advocating for him and this is all a very very sad thing. I have been to more children's funerals than I wish to remember, and I will never get used to them. So today is an understandably sad day. I am sad for Graham's family and the HUGE loss they are feeling, I am sad for all of the feelings of loss Graham's death brings up in me, and I am sad because Melanie has died and I can't talk to her about it all. It's a sad day.
- Hi There, I'm Kris. I'm a quirky sort who loves silly jokes, sunflowers, music, divine interruptions and music. I am devoted to my nerdly, ginger-haired husband, our 3 living & growing kids, and missing our 1 Babe in Heaven. We journey together through this life, dancing to our own beat, while learning each step as my children and I are effected by a life-threatening & degenerative chronic illness called Ehlers Danlos Syndrome (EDS). Please look on the "What is Ehlers Danlos Syndrome" to the bottom right of the page to learn more about EDS. I believe I have been given this journey in order to over come it, and this is my story of how I get it done.