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Hi There, I'm Kris. I'm a quirky sort who loves silly jokes, sunflowers, music, divine interruptions and music. I am devoted to my nerdly, ginger-haired husband, our 3 living & growing kids, and missing our 1 Babe in Heaven. We journey together through this life, dancing to our own beat, while learning each step as my children and I are effected by a life-threatening & degenerative chronic illness called Ehlers Danlos Syndrome (EDS). Please look on the "What is Ehlers Danlos Syndrome" to the bottom right of the page to learn more about EDS. I believe I have been given this journey in order to over come it, and this is my story of how I get it done.

Thursday, December 20, 2012

Still here, thank you.

Thank you.
Thank you  nurse K for the medication.   Thank you Mi-mi for cleaning the room while I was gone for that procedure.  Thank you for the new IV.  Thank you for the 3am blood draw. Thank you for helping me clean myself up.  Thank you for not laughing at me when I cried that I just wanted to go home.  Thank you for all of your help today, I hope you have a good evening.  Thank you for all of your help last night, rest well today.  Thank you for your visit.  Thank you for your kind card.  Thank you.

There is something so very personal and humbling and exposed about being in the hospital.  I don't get to do anything by myself, and I feel compelled to thank everyone around me for doing their job.  I hate it.  I could probably have a better attitude about it, but the fact is that I like doing things for myself.  I do not like being this vulnerable, though I'm still very thankful.

I'm still in patient, but I'm springing out for Christmas.  From there I will be monitored closely to see if I'm progressing on the outside with the threat of being re-admitted ever looming.  I have worked very hard with the help of an NJ tube to get nourished while in here, and I will have to work 3x's as hard outside.  I...can't...wait....to....get.....home!


  1. You have had the strongest most encouraging attitude. Thank you for inspiring change me.

  2. I am so behind and had no idea things had progressed to this point.
    I've had a hard time of it myself, but nothing like you are going through.
    I hope you made it home for Christmas, and can soon keep more food down.

    Sending healing thoughts to you.

    (and I do the same thing in the hospital, I thank everyone...I don't think many people do this, they always look surprised when I do...so we may want to do for ourselves, but thanking those who are doing their jobs is a good thing. I'm sure they are grateful for patients like us.)